The third and hopefully final liver biopsy is scheduled for Monday, July 18th at UCLA. Hopefully this is the final step to coming up with a correct diagnosis so my baby girl can get some treatment and on with her life.

The tumor board at UCLA met to discuss Megan.  It is very perplexing that pathology reports could be correct as she has no other symptoms.  Her health and blood work are both good.  Hopefully this next biopsy will be able to properly diagnose her.  If not the next step would be to have a more invasive procedure to gather the necessary tissue.  Hopefully we will have some preliminary results by late next Tuesday, the 19th.

No new info was learned at the appointment with the oncologist at UCLA today…which is a major bummer. 

He’s recommending that I get ANOTHER biopsy- boy, really can’t wait for that! He said that he wants to use it to make a diagnosis and also for genetic testing, in case we come to a point in my treatment that they may be able to look at using super sci-fi technology to fix me.  

He’s meeting with a tumor board tomorrow evening and they’ll discuss my case. May be we’ll learn more after that, but really the pathology is what they use as the diagnosis so I likely won’t know anything for a couple of weeks, once my biopsy is done and reviewed. 

One thing he did say, which seems to be the one thing that’s for sure: my case is weird.