We are officially registered with the Fibrolamellar Registry. Danielle is also helping the non-profit with some design work and collaborating with their marketing team.
Danielle’s also found a lot of support and a great community on Facebook called Fibrolamellars of the World Unite! It is set as a private group and is meant for those that have been directly affected by fibrolamellar.
Research we’ve looked into:
- Fibrolamellar Gene Sequencing Study Interview with Elana and Sandy Simon
- Liver Cancer Immunotherapy
- Dr. Sandy Simon at Rockeffeler University